Applying Methods of User-Centered Design to Achieve Patient-Centered Care [Methods Study], 2013-2019 (ICPSR 39484)
Version Date: Sep 3, 2025 View help for published
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Holly Witteman, Université Laval
https://doi.org/10.3886/ICPSR39484.v1
Version V1
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Patient decision aids help people choose between two or more healthcare options based on what is most important to them. Involving users, such as patients and clinicians, in developing decision aids may make them more useful.
User-centered design is a way to get users involved in creating products. Learning from projects that apply user-centered design may suggest ways to involve users more in developing patient decision aids. In this study, the research team reviewed studies about developing decision aids and studies about user-centered design.
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Study Purpose View help for Study Purpose
This project aimed to describe methods for engaging patients and clinicians in decision aid development and situate these methods within a user-centered design framework. The study aims were: (1) describe how patients and other stakeholders, including members of vulnerable populations, have or have not been involved in the development of patient decision aids; (2) situate methods used for involving patients and other stakeholders in decision aid development in the context of user-centered design; and (3) develop a measure of user involvement in the development of patient decision aids and other patient-oriented tools that provides a framework for reporting standards on user involvement.
Study Design View help for Study Design
This systematic review examined methods for engaging patients and clinicians in patient decision aid and user-centered design product development projects. Researchers searched online databases for published research articles describing at least one development step or an evaluation of a patient decision aid, or describing the development of a health-related product for patient education, social support, or self-management and specifically naming user-centered design or a related term as their guiding approach. The search had no date or language restrictions.
Two analysts independently screened articles for inclusion, assessed study quality, and extracted data relevant to the user-centered design framework. Researchers contacted authors of included articles to validate extracted data. Next, researchers applied the stages in a user-centered design framework to describe how often projects reported using different steps and engaging users in each stage.
Patients, a caregiver, and clinicians were members of the research team.
Data Source View help for Data Source
Published articles that describe at least one development stage or an evaluation of a patient decision aid, or that describe the development of a health-related project and use one of 4 terms--user-centered design, user-centred design, human-centered design, or human-centred design.
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This study is maintained and distributed by the Patient-Centered Outcomes Data Repository (PCODR). PCODR is the official data repository of the Patient-Centered Outcomes Research Initiative (PCORI).